"Thou hast beset me behind and before, and laid thine hand upon me."
Showing posts with label morning sickness. Show all posts
Showing posts with label morning sickness. Show all posts
Friday, 2 August 2013
Hyperemesis Gravidarum Pregnancy Four - Eight Weeks
Today at around eight weeks I was sick for the first (and hopefully last) time in this pregnancy. It took me by surprise as I thought it was a fairly reasonable day today but then as I was cleaning my teeth I suddenly felt an uncontrollable need to vomit. First I thought, "Why do I suddenly have an uncontrollable need to vomit?" Then I thought, "I'm cleaning my teeth of course - how silly of me not to realise." Then I finished cleaning my teeth while thinking how ridiculous it was of me to call it 'uncontrollable' when clearly I was controlling it. And then I realised I couldn't. It wasn't as bad as in previous pregnancies though as once it was over it was over and although I don't feel able to eat, I do feel tolerable rather than that intense "I'm just about to throw up" nausea remaining for ages afterwards. Maybe this is what people mean when they say they didn't mind being sick because at least they felt better afterwards - it's quite a novel experience and although I don't really want to repeat it, it is by far preferable to the usual hyperemesis gravidarum vomiting episodes. And successfully maintaining a pregnancy for this long without being stuck in bed throwing up all day is pretty amazing as it's the first time in six pregnancies that I've managed it. Thanks be to God.
Monday, 29 July 2013
Hyperemesis Gravidarum Pregnancy Four - Six to Seven Weeks
Monday 29th July
Last Sunday there was a sudden change where I felt that the medication was only really having a noticable effect for about three hours before wearing off so I increased to 2x8mg which seems to be helping. I'm not up to much and eating is much more difficult but I'm still able to get up and do all the essential stuff in the day while J is out and haven't been sick yet (though I have been close) which is a million times better than being in bed with out of control vomiting. I even managed a short outing on Thursday for L's birthday on Thursday although it has taken until today to feel fully recovered.
Last Sunday there was a sudden change where I felt that the medication was only really having a noticable effect for about three hours before wearing off so I increased to 2x8mg which seems to be helping. I'm not up to much and eating is much more difficult but I'm still able to get up and do all the essential stuff in the day while J is out and haven't been sick yet (though I have been close) which is a million times better than being in bed with out of control vomiting. I even managed a short outing on Thursday for L's birthday on Thursday although it has taken until today to feel fully recovered.
Saturday, 20 July 2013
Hyperemesis Gravidarum Pregnancy Four - Five to Six Weeks
Thursday 11th July
Although
I still feel worse in the morning, taking the ondansetron last thing
before bed seems to have improved that significantly though I'm still
unable to eat a decent sized breakfast. Snacks are necessary through
the day to stave off nausea and of course I still need to drink
frequently too due to not being able to consume such large quantities at
once. I'm currently writing this after dinner while I have a short
rest as despite today not being unusually busy I suddenly feel quite
worn out although I'm hoping I will be revived enough
to do a few more things later after the children have gone to bed.
Unfortunately today I have also had to start taking
antibiotics which make me feel sick even when not pregnant so I am
hoping that they not make me feel too sick as the run up to the stage
when I am usually at my worst is not
really the ideal time.
Monday 15th July
Mornings are still the worst and after improving when I made my evening dose later, they have got worse again but a small amount of nausea in the mornings and being unable to eat large quantities at once is far and away better than being unable to keep anything down which is where I would be heading by now without medication. I've also found I get tired very easily if I do lots of physical activity so I am having to be careful about pacing myself. I imagine I must have had this problem previously but the debility caused by nausea and vomiting meant that I wasn't actually trying to do anything other than eat and drink enough I wouldn't have noticed.
Monday 15th July
Mornings are still the worst and after improving when I made my evening dose later, they have got worse again but a small amount of nausea in the mornings and being unable to eat large quantities at once is far and away better than being unable to keep anything down which is where I would be heading by now without medication. I've also found I get tired very easily if I do lots of physical activity so I am having to be careful about pacing myself. I imagine I must have had this problem previously but the debility caused by nausea and vomiting meant that I wasn't actually trying to do anything other than eat and drink enough I wouldn't have noticed.
Saturday 20th July
Although
once it kicks in it is pretty amazing, I'm now finding the effects of
the ondansetron are wearing off sooner so I've been feeling more
nauseated in the evenings and in the mornings it is a
huge struggle to eat a few mouthfuls of breakfast. This morning when I
woke at half past four I drank some water because I was thirsty which
resulted in so much nausea that I couldn't get back to sleep. Although
it clearly is getting worse I am hoping that the additional nausea
usually caused by the antibiotics means that it will improve when I stop
taking them. This coming week is usually the week when the vomiting
kicks in and the first two times got out of control resulting in
hospitalisation so I am expecting it to reach the maximum this week
which usually lasts for four weeks before a slight improvement and since
I finish the antibiotics on Thursday it will hopefully decrease and
therefore not be so bad for the following four weeks. But even though
eating is a struggle and I am slightly worried about the possibility of
vomiting starting (in one pregnancy I was in hospital within four days
of onset of vomiting because it gets out of control so
quickly) and I do have reduced capability compared to normal I am
totally amazed at how much I am capable of and how well I am. I actually
feel like it might be possible to have a pregnancy where I am able to
live a normal life. Which on the one hand is absolutely amazing and
would be a dream come true but on the other hand would mean that I lost
twenty months of my life purely down to not being given the right
medical treatment. The idea that you should just "put up with it" no
matter how bad it is just because it is pregnancy seems ridiculous to
me. Firstly just because you might get a baby at the end of it doesn't
mean it is reasonable to expect you to endure being so ill
unnecessarily. Secondly, it is widely accepted that women should be
given all possible pain relief in labour rather than being "made to
suffer unnecessarily" even though labour is brief and at most a few days
- why is labour different? Surely people should be more grateful and
uncomplaining in labour because by that point there is much more
certainty of outcome than there is for someone suffering from excessive
vomiting in early pregnancy?
Wednesday, 10 July 2013
Hyperemesis Gravidarum Pregnancy Four - The Early Days
Wednesday 3rd July
I
had felt sick since the previous day when my
eleven month old had been sick and had assumed initially that my nausea
had the same cause. When it persisted I did a pregnancy test to
reassure myself that I wasn't pregnant only to discover that I was.
Given the effectiveness (or rather ineffectiveness) of the medications
tried in my previous hyperemesis gravidarum pregnancies, the fact that
ondansetron is effective but usually difficult to get a prescription
for in the UK and that preemptive medication is more effective, I had
intended to make sure a doctor had agreed to prescribe me ondansetron
before I next got pregnant. I booked an appointment with a GP at my
surgery
for the following morning with the intention to ask for ondansetron and
failing that an urgent referral to an ob and a very lovely friend
contacted some private obs to find out the likelyhood of an ondansetron
prescription and how soon I might be able to get an appointment.
Without medication I knew that within a week I would be very debilitated
and that within two weeks there was a high chance of being hospitalised
so time was of the essence and I was concerned about whether I would be
able to get the medication in time. As soon as my husband got home
from work (and I could go without the six year old who would cotton on
quickly if she saw some of the things I was buying), I went out to the
shops to buy various things that I needed such as pregnancy vitamins,
pregnancy sickness bands (which I feel compelled to use even though they
don't work) and various drinks and snacks that I would need. That
evening once the children were in bed,
my husband and I sat down together and went through our plan from
before the previous pregnancy updating it based on our present
circumstances and on what we thought worked well or otherwise last
time. I stayed up late printing out various research papers relating to
ondansetron and to preemptive treatment and information from Pregnancy
Sickness Support and pregnancysicknesssos.
Thursday 4th July
Although
still able to eat, my nausea was pretty constant and I was concerned
about how soon I might go downhill. My appointment was midmorning so I
had time to order a few bits and pieces online that would be helpful. I
went in to see the GP who I didn't feel especially optimistic about and
explained the current situation, my previous experiences of hyperemesis
gravidarum and the fact that I was keen to avoid hospitalisation and
listed all the medications I had previously
had that had either been insufficient, ineffective or resulted in
abreaction. She agreed that Idefinitely
needed to be given something and I said tentatively, "Ondansetron is
supposed to be effective and is safe in pregnancy." She then told
me that she had had it after a hospitalisation as she had suffered
hyperemesis gravidarum in her pregnancies and so she was happy to
prescribe it. She queried whether it was safe for breastfeeding but
thankfully I had recently contacted the Breastfeeding Network to check
the safety of various antiemetics during breastfeeding and she was happy
with the information I had obtained. As she was unsure of the dose,
she phoned the Pregnancy Assesment Unit (PAU) at the local hospital and
asked a midwife. The midwife then started saying that if ondansetron
didn't work then there was "nowhere to go" after that (which is untrue
as steroids are an option and are in the hospital protocol that I
obtained via Freedom of Information Act request) and that "every
pregnancy is different" (a classic phrase used by medical professionals
to suggest that women who have had HG previously should still wait until
they are very sick before arranging or getting
treatment) so I should "work through the ladder" or medications that
previously hadn't been effective. My heart sank as I feared that the
ondanstron which had seemed so close would now be snatched away but my
GP asked to speak to a consultant and I said that the ondansetron was
actually less likely to work if I got it later when I was more sick due
to working through other medications which had been shown not to work
for me already. I don't know which consultant she spoke to but based on
the conversation it seemed that she had also had ondansetron and said
that with my medical history it made sense to have it straight away so I
was started on 2x4mg/day with the option to increase it up to 2x8mg/day
if necessary. I was so relieved that I almost cried in my appointment
and I don't think I have ever been so happy in my life about being given
a prescription. It was so amazing and I really felt like God's hand
was there giving me the
right doctors so that I was able to get the medication I needed as
early as possible. My local pharmacy unsurprisingly did not have it in
stock and said that they couldn't get it in until the following day so I
started phoning pharmacies in other villages. The first one I got
through to could get it in for mid afternoon and it turned out that my
husband needed to stop in that village on the way home from work so
rather than me trail out with the two children when feeling unwell in
order to get it a couple of hours sooner, he picked it up. According to
the leaflet in the packet it can take 1-2 hours to take effect and I
was beginning to wonder if it was going to work for me when around 2 1/2
hours after taking it I felt a noticable improvement in the nausea. In
addition to all this excitement, I was also packing and preparing to go
away to Birmingham the following day in order to attent the Pregnancy
Sickness Support Trust
Conference on the Saturday. I was very thankful that the ondansetron
appeared to be helping as I knew that if it didn't there was a good
chance that I might not be able to attend the conference.
Friday 5th July
I
felt pretty bad
in the morning (although still fully functional) until around 2 1/2
hours after taking my ondansetron and worried slightly whether 4mg was
enough but once it had kicked in I was pretty good. We set out on our
journey and although I still felt nauseated if I didn't eat/drink
frequently enough diligently following my plan to eat and drink
something at least every two hours meant I was okay although I found I
was unable to eat a normal sized meal in one sitting as I would start to
feel much more nauseated once I had eaten a certain amount.
Saturday 6th July
I
managed the conference. I was so pleased as the previous year I was
about eight months pregnant and too ill to attend and I had been looking
forward to being well enough for this year. I had to be diligent about
snacking and drinking in order to stay okay and could only eat a small
lunch but I actually felt
reasonably normal albeit still a bit shocked by the events of the last
few days.
Sunday 7th July
After
what felt like a mammoth trip and lots of sleep disturbance due to the
eleven
month having a cold and being disrupted by all the travelling I was
pretty tired and felt
sick in the morning but again it improved around 2 1/2 hours after
taking the medication. I had been wearing long sleeved tops to hide the
sea bands from my six year old who would have recognised them from my
previous two pregnancies but in a
heat wave this was not really the most comfortable and it's not like
they actually make any notable difference so I decided to stop wearing
them. By this time I was not feeling like I really needed to have my
evening medication as soon as it was due so I tried having it slightly
later in the hope that this would improve the morning.
Monday 8th
July
Breakfast
is usually my smallest meal of the day anyway but I was unable to eat
all of my usual portion. I really tried to and I kept thinking, "That's
4mg of iron" but I just couldn't do it. Once my medication kicked in, I
felt better and I did my usual frequent drinks/snacks and tried not to
overdo it and was reasonably okay. Since I felt well enough that
evening I waited until bedtime to take my ondansetron as first thing in
the morning was definitely my worst time.
Tuesday 9th July
Although
I
didn't feel good in the morning, taking the evening medication last
thing before bed definitely made a difference. I could still only eat a
reduced portion of breakfast but I felt less nauseated
and more functional. I had a blood test first thing which had been
booked three weeks earlier and although I was slightly regretting it by
the time I got there I was actually able to walk there. I walked slowly
on the way back rather than normal speed but was so worn out that I had
to lie down and rest until my husband had got everything
ready to go to the optician and then on for a picninc lunch in the
Botanical Gardens for my Auntie's birthday. In previous pregnancies I
wouldn't have even managed the walk to the doctors surgery so although I
found it pretty arduous and exhausting, it was absolutely amazing that I
was able to manage our day out. Once we got home I had to rest for a
couple of hours because I was so worn out but then I was able to get up
and do a few bits and pieces.
Wednesday
10th July
After
a tiring Tuesday, I didn't think I would be up to much but I was
surprised to find that I was able to manage all the normal stuff at home
in the day such as washing, cooking etc which I was very pleased
about. I still needed to be careful about my eating but frequency was
become less critical from a nausea control point of view but was still
needed due to my inability to eat a full sized meal in one sitting. In
the evening I popped to the Coop (about 250m away) to pick up a few
things and by the time I got home I needed to sit down for a rest and
felt like I'd done something much more
strenuous. Although I'm glad to be
capable of more, in some ways it is reassuring to be tired more
easily. When I had a first trimester miscarriage, my nausea was fairly
similar without medication to what this is so far with medication but I
did not have any tiredness or impairment in my capability so the
presence in a reduced form of symptoms I usually have but didn't have
then seems like a positive sign.
Tuesday, 4 December 2012
Duchess of Cambridge has Hyperemesis Gravidarum
Yesterday, it was announced to the world that the Duchess of Cambridge had been admitted to hospital for hyperemesis gravidarum. Whilst I am pleased that this is bringing publcity for the condition and may help sufferers of it, I am not glad that she is suffering. This is actually my first HG free December/Christmas in three years so I know first hand just how horrible it is to suffer from it at this time of year. It is a pretty horrendous illness to suffer from especially since it is so misunderstood but to have to live through it whilst under the scrutiny of the world's media must make it far worse.
Already people are criticising both the fact that the pregnancy has been announced "too early" (whatever that means) and the fact that she has been admitted to hospital for "just morning sickness" whilst "us commoners just get on with it".
Hyperemesis gravidarum does not discriminate by social class. Whilst some claim that her position means she has it easy and gets the best possible treatment straight away, I do not believe this to be so. Given that admission to hospital meant announcing the pregnancy not just to friends and family at an early stage (which is something that many of us are forced by HG to do) but to the entire world, it is not likely that she would have rushed to hospital unless it was pretty bad. Many of us have had hospital admission delayed due to prejudice and lack of knowledge but she and William must have had to think of the media attention involved when deciding whether/when to seek hospital treatment. Hyperemesis gravidarum is not morning sickness - it is incomparable and requires medical treatment.
Just last week she was performing royal duties (i.e. doing her job) and while some critics use this to argue that she cannot be that ill, I disagree. Firstly, once the vomiting strikes a person can go downhill to the point of needing hospital admission very rapidly. And secondly, given she didn't know how serious her condition would become and given her position I imagine she forced herself to carry on at a time when many people would have had the option to call in sick for a day or two.
As far as announcing "too early" is concerned, why is it too early? Yes the pregnancy might go wrong and I imagine that is why they did not want to announce it yet and only did so because they were forced to. If they had chosen to then that would be their perogative. Since they did not choose it but had it thrust on them by the nightmare that is hyperemsis gravidarum they deserve our sympathy and not out judgement. I hope and pray that this pregnancy will not go wrong but I also hope that in the event that it did that people would be sympathetic and not judgemental. Announcing a pregnancy does not cause it to go wrong and thirteen weeks is not a magic point beyond which it is safe and never goes wrong.
As far as media coverage of hyperemesis gravidarum goes, it has been a mixed bag. I know that many people have been contacted through the Pregnancy Sickness Support Trust and have had good interviews but there have also been many medical professionals perpetuating the typical misinformation and old wives tales.
Hyperemesis gravidarum cannot be treated with ginger or pear drops. In fact ginger is a bad idea if you are going to vomit as it burns on the way back up. I believe research has shown it to have some effect on nausea but not on vomiting which presumably is why it helps with regular morning sickness. Suggesting it to a hyperemesis gravidarum sufferer is like suggesting a sticky plaster to someone with a broken leg. It just doesn't work.
Hyperemesis is not benign with no long lasting effects. When I mentioned this particular claim (apparently made by a GP on national television), he said to me, "Don't some people lose teeth?" He is correct. Some people suffer organ failure, damaged oesophagus and other physical effects which can be long lasting. Sometimes the illness is so severe or access to treatment is so limited due to lack of knowledge in the medical profession that women have to resort to termination of much wanted pregnancies. Hardly benign with no long lasting effects. It limits people's family size, destroys marriages and causes people to lose their jobs. And then there are the psychological effects. Reminders of the pregnancy and the illness such as the time of year, clothing or food you ate or didn't eat, places you went to etc can trigger flashbacks, nausea and sometimes even vomiting. Seems long lasting to me.
And what about William? Spare a thought for him. Yes he is not the one lying in a hospital bed on a drip. But he has to support his wife. He has to see her this ill whilst not being able to do anything about it. Last time I was admitted to hospital for hyperemesis gravidarum my husband thought I might die. Money and status does not protect you from that or make it any easier. I hope that Kate is one of the more fortunate ones whose hyperemesis goes by around twenty weeks but if it does not then he almost has to live with no wife for eight months. I'm sure privilege and private hospitals do not stop it from being a horrendous experience for anyone and I hope that those around them are well informed and supportive.
Already people are criticising both the fact that the pregnancy has been announced "too early" (whatever that means) and the fact that she has been admitted to hospital for "just morning sickness" whilst "us commoners just get on with it".
Hyperemesis gravidarum does not discriminate by social class. Whilst some claim that her position means she has it easy and gets the best possible treatment straight away, I do not believe this to be so. Given that admission to hospital meant announcing the pregnancy not just to friends and family at an early stage (which is something that many of us are forced by HG to do) but to the entire world, it is not likely that she would have rushed to hospital unless it was pretty bad. Many of us have had hospital admission delayed due to prejudice and lack of knowledge but she and William must have had to think of the media attention involved when deciding whether/when to seek hospital treatment. Hyperemesis gravidarum is not morning sickness - it is incomparable and requires medical treatment.
Just last week she was performing royal duties (i.e. doing her job) and while some critics use this to argue that she cannot be that ill, I disagree. Firstly, once the vomiting strikes a person can go downhill to the point of needing hospital admission very rapidly. And secondly, given she didn't know how serious her condition would become and given her position I imagine she forced herself to carry on at a time when many people would have had the option to call in sick for a day or two.
As far as announcing "too early" is concerned, why is it too early? Yes the pregnancy might go wrong and I imagine that is why they did not want to announce it yet and only did so because they were forced to. If they had chosen to then that would be their perogative. Since they did not choose it but had it thrust on them by the nightmare that is hyperemsis gravidarum they deserve our sympathy and not out judgement. I hope and pray that this pregnancy will not go wrong but I also hope that in the event that it did that people would be sympathetic and not judgemental. Announcing a pregnancy does not cause it to go wrong and thirteen weeks is not a magic point beyond which it is safe and never goes wrong.
As far as media coverage of hyperemesis gravidarum goes, it has been a mixed bag. I know that many people have been contacted through the Pregnancy Sickness Support Trust and have had good interviews but there have also been many medical professionals perpetuating the typical misinformation and old wives tales.
Hyperemesis gravidarum cannot be treated with ginger or pear drops. In fact ginger is a bad idea if you are going to vomit as it burns on the way back up. I believe research has shown it to have some effect on nausea but not on vomiting which presumably is why it helps with regular morning sickness. Suggesting it to a hyperemesis gravidarum sufferer is like suggesting a sticky plaster to someone with a broken leg. It just doesn't work.
Hyperemesis is not benign with no long lasting effects. When I mentioned this particular claim (apparently made by a GP on national television), he said to me, "Don't some people lose teeth?" He is correct. Some people suffer organ failure, damaged oesophagus and other physical effects which can be long lasting. Sometimes the illness is so severe or access to treatment is so limited due to lack of knowledge in the medical profession that women have to resort to termination of much wanted pregnancies. Hardly benign with no long lasting effects. It limits people's family size, destroys marriages and causes people to lose their jobs. And then there are the psychological effects. Reminders of the pregnancy and the illness such as the time of year, clothing or food you ate or didn't eat, places you went to etc can trigger flashbacks, nausea and sometimes even vomiting. Seems long lasting to me.
And what about William? Spare a thought for him. Yes he is not the one lying in a hospital bed on a drip. But he has to support his wife. He has to see her this ill whilst not being able to do anything about it. Last time I was admitted to hospital for hyperemesis gravidarum my husband thought I might die. Money and status does not protect you from that or make it any easier. I hope that Kate is one of the more fortunate ones whose hyperemesis goes by around twenty weeks but if it does not then he almost has to live with no wife for eight months. I'm sure privilege and private hospitals do not stop it from being a horrendous experience for anyone and I hope that those around them are well informed and supportive.
Monday, 14 November 2011
Hyperemesis Gravidarum Pregnancy Three? Four Weeks
I am currently four weeks pregnant. I am feeling worse than the shorter pregnancies but better than the previous hyperemesis pregnancies so I am hopeful that a) the pregnancy will last long enough and b) I will not be as ill as I was last time.
So far the times I have felt the worst have been when J was over an hour late making breakfast on Saturday morning and when I walked about 100 metres from the car to church on Sunday morning. I find standing makes me feel much worse so I did not stand for the singing at church and abandoned attempting to sing half way through the first song. After the service, J went and drove the car up to the chapel to pick me. If I wanted to I could actually do all those things but I can tell how much worse they make me feel and knowing that it has a cumulative effect I know it is not worth it in the long run to make myself do things that make me worse just because at this stage I'm not actually being sick. Next week we will only go to one service as it was definitely a mistake to go to two.
Aside from the usual pregnancy multivitamin, I am taking B vitamins, homeopathic remedies, an anti emetic and other supplements such as ginger capsules. I am wearing sea bands and to make sure I eat/drink frequently enough I have three meals, three snacks and twelve drinks per day scheduled (along with all the things I'm taking) on my iPod. J gets up at seven and gives me drinks and breakfast in bed before he goes to work and I get up at 8.30 when he goes out. I have a two hour rest in bed in the afternoon while A has quiet time and aim to be in bed around nine in the evening. I made and froze lots of dinners before I was pregnant so J gets one out and puts it in a bowl in the fridge the evening before so that I can just pop it in the microwave when he is due home.
So far the plans/preparations/reorgaqnisation I have done mean that although J has taken over some of the things I usually do his workload is not dramatically increased and he still has time to spend with me. And although I am not able to take her out, A can play in the garden and I am still able to do all the usual "school" type things with her.
So far so good. I am really hopeful that by taking pre-emptive medication and doing everything possible that might help pre-emptively rather than reactively I will be less ill.
So far the times I have felt the worst have been when J was over an hour late making breakfast on Saturday morning and when I walked about 100 metres from the car to church on Sunday morning. I find standing makes me feel much worse so I did not stand for the singing at church and abandoned attempting to sing half way through the first song. After the service, J went and drove the car up to the chapel to pick me. If I wanted to I could actually do all those things but I can tell how much worse they make me feel and knowing that it has a cumulative effect I know it is not worth it in the long run to make myself do things that make me worse just because at this stage I'm not actually being sick. Next week we will only go to one service as it was definitely a mistake to go to two.
Aside from the usual pregnancy multivitamin, I am taking B vitamins, homeopathic remedies, an anti emetic and other supplements such as ginger capsules. I am wearing sea bands and to make sure I eat/drink frequently enough I have three meals, three snacks and twelve drinks per day scheduled (along with all the things I'm taking) on my iPod. J gets up at seven and gives me drinks and breakfast in bed before he goes to work and I get up at 8.30 when he goes out. I have a two hour rest in bed in the afternoon while A has quiet time and aim to be in bed around nine in the evening. I made and froze lots of dinners before I was pregnant so J gets one out and puts it in a bowl in the fridge the evening before so that I can just pop it in the microwave when he is due home.
So far the plans/preparations/reorgaqnisation I have done mean that although J has taken over some of the things I usually do his workload is not dramatically increased and he still has time to spend with me. And although I am not able to take her out, A can play in the garden and I am still able to do all the usual "school" type things with her.
So far so good. I am really hopeful that by taking pre-emptive medication and doing everything possible that might help pre-emptively rather than reactively I will be less ill.
Wednesday, 5 October 2011
Hyperemesis Gravidarum Pregnancy Two: Part Two - Admission to Hospital
As with my previous HG pregnancy I had been admitted to hospital less than twelve hours after being told by an out of hours GP that I did not need to be admitted. The previous time I had been given excellent treatment and had improved fairly quickly. This time was the opposite.
All the routine things were done such as taking my history, running through the treatment plan (which was as I expected having been through it before), patronising me with reassurance that I didn't need to worry because the baby would still get the nutrition it needed, inserting a canula (this time they only needed to go one size down) and doing various tests. Being dehydrated and having provided a urine sample at the GP I was unsurprisingly unable to provide another one. Despite the fact that I had drunk nothing, four hours later when I was finally given IV fluids they seem surprised that I was still unable to produce one.
In the evening I was offered a "warfarin" injection to reduce the risk of deep vein thrombosis which I declined. Warfarin is particularly dangerous to the unborn child but as I later found out when I obtained a copy of my hospital records it was actually low molecular weight heparin they were offering me and not warfarin.
My first anti emetic was finally given about twelve hours after I was admitted at around 11pm (although recorded in my notes as 7pm). Within a few hours I was feeling much worse so when I said I couldn't manage oral painkillers I was given the antiemetic intravenously. I managed to swallow the pain killers but was sick before the midwife had time to walk to the next person. Even though I had been admitted for hyperemesis nobody had thought to provide me with sick bowls but I had with me the yoghurt pots I had carried for the journey so was able to use one of them.
I was offered the same anti emetic (cyclizine) two or three times the next day (Thursday) but since it had made me worse, I said I didn't want it as it didn't work. Eventually one of the midwives told me that I needed to take it because if I didn't I wouldn't be given anything else. I told her that as I was pregnant I did not want to take unnecessary medication, that since the cyclizine did not work it was an unnecessary medication and that it was unreasonable to refuse to give me something else just because I wouldn't take something that wasn't working. She took my point and at 5.30pm I was given metoclopramide. Although there appears to be no record of this dose anywhere in my notes, when I requested a further dose at midnight I was told I needed to wait a further two hours as apparently it was eight hourly. I asked if there was anything else I could have and the midwife said she would ask a doctor for something else. Although I was awake most of the night due to the crying babies in the postnatal room next to the room I was in, I was not given any anti emetics until the next morning and my records say I was "sleeping" at multiple times through the night which presumably means that I was lying still with my eyes shut as one usually does when attempting to sleep.
After being given my "anti emetic" on Friday morning I was much worse again and on enquiry later in the day I was told I had been given cyclizine rather than the metoclopramide I was supposed to have been given (neither is recorded in my notes as having been given). This meant that instead of receiving three doses in 24 hours I had been given one dose, missed one dose and been given the wrong thing before being given a second dose of metoclopramide.
By now it was Christmas Eve and they seemed to be keen to discharge everyone regardless of how ill they were. One lady who was readmitted with sickness the day after me had been discharged prematurely the day prior to her readmission and another lady who had been in overnight and promised certain medication was then discharged with paracetamol - both commented that they just seemed to want to get everyone out without regard to whether they were ready just because it was Christmas.
Even though I was worse and had only consumed a quarter slice of toast and a few sips of orange juice since being admitted the doctor who saw me that morning had me taken off the drip and told me to drink a glass of water per hour with a view to me going home that afternoon. Although I knew it to be futile I did make some attempts at drinking but every time I had a single sip of water I vomited violently and was unable to make another attempt for some time. I was only actually sick six times that day but the frequent retching in between (which was just as bad - whether anything came out or not was a moot point really) made it impossible for me to consume anything. After three hours off the drip they realised I was becoming increasingly dehydrated again and resumed intravenous rehydration although according to my notes they still hoped to discharge me later that day.
All the routine things were done such as taking my history, running through the treatment plan (which was as I expected having been through it before), patronising me with reassurance that I didn't need to worry because the baby would still get the nutrition it needed, inserting a canula (this time they only needed to go one size down) and doing various tests. Being dehydrated and having provided a urine sample at the GP I was unsurprisingly unable to provide another one. Despite the fact that I had drunk nothing, four hours later when I was finally given IV fluids they seem surprised that I was still unable to produce one.
In the evening I was offered a "warfarin" injection to reduce the risk of deep vein thrombosis which I declined. Warfarin is particularly dangerous to the unborn child but as I later found out when I obtained a copy of my hospital records it was actually low molecular weight heparin they were offering me and not warfarin.
My first anti emetic was finally given about twelve hours after I was admitted at around 11pm (although recorded in my notes as 7pm). Within a few hours I was feeling much worse so when I said I couldn't manage oral painkillers I was given the antiemetic intravenously. I managed to swallow the pain killers but was sick before the midwife had time to walk to the next person. Even though I had been admitted for hyperemesis nobody had thought to provide me with sick bowls but I had with me the yoghurt pots I had carried for the journey so was able to use one of them.
I was offered the same anti emetic (cyclizine) two or three times the next day (Thursday) but since it had made me worse, I said I didn't want it as it didn't work. Eventually one of the midwives told me that I needed to take it because if I didn't I wouldn't be given anything else. I told her that as I was pregnant I did not want to take unnecessary medication, that since the cyclizine did not work it was an unnecessary medication and that it was unreasonable to refuse to give me something else just because I wouldn't take something that wasn't working. She took my point and at 5.30pm I was given metoclopramide. Although there appears to be no record of this dose anywhere in my notes, when I requested a further dose at midnight I was told I needed to wait a further two hours as apparently it was eight hourly. I asked if there was anything else I could have and the midwife said she would ask a doctor for something else. Although I was awake most of the night due to the crying babies in the postnatal room next to the room I was in, I was not given any anti emetics until the next morning and my records say I was "sleeping" at multiple times through the night which presumably means that I was lying still with my eyes shut as one usually does when attempting to sleep.
After being given my "anti emetic" on Friday morning I was much worse again and on enquiry later in the day I was told I had been given cyclizine rather than the metoclopramide I was supposed to have been given (neither is recorded in my notes as having been given). This meant that instead of receiving three doses in 24 hours I had been given one dose, missed one dose and been given the wrong thing before being given a second dose of metoclopramide.
By now it was Christmas Eve and they seemed to be keen to discharge everyone regardless of how ill they were. One lady who was readmitted with sickness the day after me had been discharged prematurely the day prior to her readmission and another lady who had been in overnight and promised certain medication was then discharged with paracetamol - both commented that they just seemed to want to get everyone out without regard to whether they were ready just because it was Christmas.
Even though I was worse and had only consumed a quarter slice of toast and a few sips of orange juice since being admitted the doctor who saw me that morning had me taken off the drip and told me to drink a glass of water per hour with a view to me going home that afternoon. Although I knew it to be futile I did make some attempts at drinking but every time I had a single sip of water I vomited violently and was unable to make another attempt for some time. I was only actually sick six times that day but the frequent retching in between (which was just as bad - whether anything came out or not was a moot point really) made it impossible for me to consume anything. After three hours off the drip they realised I was becoming increasingly dehydrated again and resumed intravenous rehydration although according to my notes they still hoped to discharge me later that day.
Wednesday, 28 September 2011
Hyperemesis Gravidarum Pregnancy Two: Part One - Descent into sickness
Since I was so ill in my first pregnancy (too ill to look after myself let alone a baby or toddler) we felt we needed to allow a large age gap before another pregnancy in case I was ill again and A was 3 1/2 when I next had hyperemesis gravidarum. In some ways I was relieved when I realised it was a hyperemesis pregnancy as I had recently had miscarriages of non-hyperemesis pregnancies and the sickness made me feel more confident of a good outcome. (In my first pregnancy the doctors kept telling me that the good news about having bad sickness was a much lower risk of miscarriage but at the time when you are that sick you don't really care.)
In the intervening years since my first pregnancy I had forgotten how bad it was. In some ways the actual sickness is not the worst thing. The worst thing is that people do not believe how bad it is. I had people say that they were able to carry on working during pregnancy because they just had to keep going even though they felt sick. As if I could keep going but was just choosing not to. Many people who have only had morning sickness seem to think that the reason you are ill is because nobody has told you that you just need to eat ginger or eat before you get up in the morning or eat crackers or whatever it was that helped ease their much milder sickness/nausea.
As a result I actually started looking into how serious hyperemesis gravidarum is. Until the introduction of intravenous rehydration in the 1940's it was actually the leading cause of death in pregnancy:
It was only at this point that I realised that without the IV fluids, it is quite possible that I might have died in my first pregnancy.
I saw my GP for an anti emetic but within a week I went back because I was being so sick. Unfortunately whilst not easing enough for me to not be losing weight my sickness did vary enough that when I saw him I was not ketotic so he sent me home with a different anti emetic and told me to come back if I got worse and that if I became ketotic he would refer me to the hospital.
The rest of that day (Monday) I wasn't sick but the following day I started being sick again and when I checked in the afternoon I was ketotic so I asked J to book me a doctors appointment for first thing Wednesday morning. As the evening progressed I realised that I needed to be admitted to hospital for IV fluids so J phoned the out of hours service. The doctor he spoke to said that he should bring me in and if I tested positive for ketones he would have me admitted to hospital. Unfortunately by the time we got there (after J had packed me a hospital bag and got A up and ready to go out) there had been a shift change and the doctor who saw me seemed to think the best possible thing was to keep me out of hospital for as long as possible and gave me a buccal version of the anti emetic I already had. This did make me well enough to take a few sips of water overnight and the following morning I saw my GP who promptly referred me for hospital admission.
The previous time I had been in hospital for three days and had improved fairly quickly so since I had managed to control the sickness better (due to experience) and had only lost five pounds by the time I was admitted I was fairly optimistic that I would soon be improved and thought I may only be in for two days which would have allowed me to be home before Christmas Day. Unfortunately this was not to be.
In the intervening years since my first pregnancy I had forgotten how bad it was. In some ways the actual sickness is not the worst thing. The worst thing is that people do not believe how bad it is. I had people say that they were able to carry on working during pregnancy because they just had to keep going even though they felt sick. As if I could keep going but was just choosing not to. Many people who have only had morning sickness seem to think that the reason you are ill is because nobody has told you that you just need to eat ginger or eat before you get up in the morning or eat crackers or whatever it was that helped ease their much milder sickness/nausea.
As a result I actually started looking into how serious hyperemesis gravidarum is. Until the introduction of intravenous rehydration in the 1940's it was actually the leading cause of death in pregnancy:
"Hyperemesis gravidarum was a significant cause of maternal death before 1940. In Great Britain, mortality decreased from 159 deaths per million births from 1931-1940 to 3 deaths per million births from 1951-1960. Charlotte Brontë is thought to have died of hyperemesis gravidarum in 1855. In the United States, 7 deaths from hyperemesis gravidarum were reported in the 1930s. Today, although hyperemesis gravidarum is still associated with significant morbidity, it is still a rare cause of maternal mortality.
...
Hyperemesis gravidarum is a debilitating illness that can cause severe suffering, which profoundly affects both patients and their families. In about half of the women there is an adverse effect on spousal relationships, and 55% have feelings of depression. In one study of 140 women with hyperemesis gravidarum, 27% required multiple hospitalizations.
(from http://emedicine.medscape.com/article/254751-overview ).
It was only at this point that I realised that without the IV fluids, it is quite possible that I might have died in my first pregnancy.
I saw my GP for an anti emetic but within a week I went back because I was being so sick. Unfortunately whilst not easing enough for me to not be losing weight my sickness did vary enough that when I saw him I was not ketotic so he sent me home with a different anti emetic and told me to come back if I got worse and that if I became ketotic he would refer me to the hospital.
The rest of that day (Monday) I wasn't sick but the following day I started being sick again and when I checked in the afternoon I was ketotic so I asked J to book me a doctors appointment for first thing Wednesday morning. As the evening progressed I realised that I needed to be admitted to hospital for IV fluids so J phoned the out of hours service. The doctor he spoke to said that he should bring me in and if I tested positive for ketones he would have me admitted to hospital. Unfortunately by the time we got there (after J had packed me a hospital bag and got A up and ready to go out) there had been a shift change and the doctor who saw me seemed to think the best possible thing was to keep me out of hospital for as long as possible and gave me a buccal version of the anti emetic I already had. This did make me well enough to take a few sips of water overnight and the following morning I saw my GP who promptly referred me for hospital admission.
The previous time I had been in hospital for three days and had improved fairly quickly so since I had managed to control the sickness better (due to experience) and had only lost five pounds by the time I was admitted I was fairly optimistic that I would soon be improved and thought I may only be in for two days which would have allowed me to be home before Christmas Day. Unfortunately this was not to be.
Wednesday, 21 September 2011
Hyperemesis Gravidarum Pregnancy One
Before my first pregnancy I had never even heard of hyperemesis gravidarum. I had heard of morning sickness and knew that some people had it bad enough to need medication but I had absolutely no idea that pregnancy sickness could be so bad.
The first time I was sick was at three weeks pregnant. The next week I hardly got anything done because I felt rotten and then when we went on holiday the next week we had to greatly reduce our planned walks as I just couldn't manage them without feeling very ill. Little knowing how bad it would get, it was actually a great relief when I got a positive pregnancy test at five weeks as I'd been beginning to wonder if something was seriously wrong with me.
Around five and a half weeks I had to see the out of hours doctor because I was unable to keep anything down and was given an injection and some tablets to take. Over the next week as they didn't work I was given various different tablets and the morning after being told by two different out of hours doctors that I did not need to be admitted to hospital I saw my GP who actually took notice of the fact that I'd lost a stone in weight and referred me to be assessed at the hospital. The doctor who admitted me thought I was so bad that he actually set up the drip himself almost immediately and asked us why we'd waited so long. Because I was so dehydrated he had to ask for a child sized cannula as my veins were so small.
After three days of IV fluids and medication, I was well enough to be discharged. When I asked about being given medication to take at home I was told that they don't give you medication when you leave and you just had to be readmitted if you get bad enough.
Even after I'd been in hospital, people generally didn't seem to realise how ill I was. One person asked how I'd managed to be admitted to hospital when she hadn't but then in the next breath said that she only took the anti emetics if she was sick three times in a day as it interfered with her life too much to not be able to drive. At the time I would have loved to only be sick three times in a day and for anti emetics to actually make a difference. And driving was a moot point since I was so ill I had no life for lack of driving to interfere with.
Although I was sick all the way through the pregnancy, it did decrease over time to the point that in the second half of my pregnancy I was occasionally able to manage the three minute walk to the doctor's surgery for my midwife appointments. One day when visiting some friends we went for a walk but two minutes down the hill J had to go and get the car to drive me back. In the early days when I was too ill to read or sit at the computer I watched daytime TV to relieve the boredom of sitting at home on my own all day doing nothing other than attempting to eat and drink and not be sick too much. Unfortunately daytime TV is mind numbingly boring and I was very relieved when I felt well enough to read albeit only easy reading such as children's fiction.
My typical day in pregnancy looked something like this:
0800: Eat breakfast in bed, clean teeth in bed and go back to sleep.
1100: Get up. Watch TV or read a book.
1230: Get dressed with J's help (he came home for lunch almost every day while I was pregnant to look after me). Talk to J while he makes lunch then eat lunch.
1315: Watch the news/other TV.
1430: Do a few admin jobs on the computer if well enough.
1530: Watch TV/DVD/read a book.
1630: Sleep
1800: Get up and watch the news.
1900: Eat dinner then watch TV/read while J washes up and does a few other jobs.
2100: Go to bed.
I quite often had a long bath in the evening to break up the monotony but it was quite tiring and created even more work for J who was already working full time, doing everything essential that I usually did and looking after me. I was constantly tired but at least sleeping 12-16 hours a day meant that I didn't have so many hours of feeling sick, tired, bored and lonely to endure.
The transformation when A was born was amazing. Two weeks before she was born, I would hand J paper tissues to put in the bin because the bin was a meter away but two weeks after she was born I was easily going for two mile walks every day. In the week after she was born I did more household jobs (not counting baby related tasks) than I'd done in the month before (possibly even more than the whole pregnancy - I only cooked one meal beyond four weeks pregnant). Some friends thought it was strange that I was happy to stay at home all day and wasn't bothered about meeting up as they said they would get lonely staying at home "on their own" all day. But for me the contrast with pregnancy was so huge that I was perfectly content. I wasn't sitting at home on my own any more - I had A with me and I was no longer doing nothing so I was too busy to be lonely. I actually felt quite baffled that suddenly people wanted to meet up/visit now that I didn't need it after I'd been stuck at home on my own for months on end without them ever offering to visit.
And that was my first pregnancy.
The first time I was sick was at three weeks pregnant. The next week I hardly got anything done because I felt rotten and then when we went on holiday the next week we had to greatly reduce our planned walks as I just couldn't manage them without feeling very ill. Little knowing how bad it would get, it was actually a great relief when I got a positive pregnancy test at five weeks as I'd been beginning to wonder if something was seriously wrong with me.
Around five and a half weeks I had to see the out of hours doctor because I was unable to keep anything down and was given an injection and some tablets to take. Over the next week as they didn't work I was given various different tablets and the morning after being told by two different out of hours doctors that I did not need to be admitted to hospital I saw my GP who actually took notice of the fact that I'd lost a stone in weight and referred me to be assessed at the hospital. The doctor who admitted me thought I was so bad that he actually set up the drip himself almost immediately and asked us why we'd waited so long. Because I was so dehydrated he had to ask for a child sized cannula as my veins were so small.
After three days of IV fluids and medication, I was well enough to be discharged. When I asked about being given medication to take at home I was told that they don't give you medication when you leave and you just had to be readmitted if you get bad enough.
Even after I'd been in hospital, people generally didn't seem to realise how ill I was. One person asked how I'd managed to be admitted to hospital when she hadn't but then in the next breath said that she only took the anti emetics if she was sick three times in a day as it interfered with her life too much to not be able to drive. At the time I would have loved to only be sick three times in a day and for anti emetics to actually make a difference. And driving was a moot point since I was so ill I had no life for lack of driving to interfere with.
Although I was sick all the way through the pregnancy, it did decrease over time to the point that in the second half of my pregnancy I was occasionally able to manage the three minute walk to the doctor's surgery for my midwife appointments. One day when visiting some friends we went for a walk but two minutes down the hill J had to go and get the car to drive me back. In the early days when I was too ill to read or sit at the computer I watched daytime TV to relieve the boredom of sitting at home on my own all day doing nothing other than attempting to eat and drink and not be sick too much. Unfortunately daytime TV is mind numbingly boring and I was very relieved when I felt well enough to read albeit only easy reading such as children's fiction.
My typical day in pregnancy looked something like this:
0800: Eat breakfast in bed, clean teeth in bed and go back to sleep.
1100: Get up. Watch TV or read a book.
1230: Get dressed with J's help (he came home for lunch almost every day while I was pregnant to look after me). Talk to J while he makes lunch then eat lunch.
1315: Watch the news/other TV.
1430: Do a few admin jobs on the computer if well enough.
1530: Watch TV/DVD/read a book.
1630: Sleep
1800: Get up and watch the news.
1900: Eat dinner then watch TV/read while J washes up and does a few other jobs.
2100: Go to bed.
I quite often had a long bath in the evening to break up the monotony but it was quite tiring and created even more work for J who was already working full time, doing everything essential that I usually did and looking after me. I was constantly tired but at least sleeping 12-16 hours a day meant that I didn't have so many hours of feeling sick, tired, bored and lonely to endure.
The transformation when A was born was amazing. Two weeks before she was born, I would hand J paper tissues to put in the bin because the bin was a meter away but two weeks after she was born I was easily going for two mile walks every day. In the week after she was born I did more household jobs (not counting baby related tasks) than I'd done in the month before (possibly even more than the whole pregnancy - I only cooked one meal beyond four weeks pregnant). Some friends thought it was strange that I was happy to stay at home all day and wasn't bothered about meeting up as they said they would get lonely staying at home "on their own" all day. But for me the contrast with pregnancy was so huge that I was perfectly content. I wasn't sitting at home on my own any more - I had A with me and I was no longer doing nothing so I was too busy to be lonely. I actually felt quite baffled that suddenly people wanted to meet up/visit now that I didn't need it after I'd been stuck at home on my own for months on end without them ever offering to visit.
And that was my first pregnancy.
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